Twenty-nine in NoJoMo 2015

What are you most proud of this year?

This is a tough one, because I’m really not proud of where I am in a lot of areas of my life. A lot of it has been happenstance, but I pride myself in my ability to adapt to the circumstances.

For this year, though, I guess it’d be dealing with my disease. I was in a tough situation early in the year, then found that my doctors didn’t accept my new insurance.

My company’s insurance, which has zero local coverage, I’d declined, so I ended up buying a plan from the Federal Exchange. Incredibly expensive; so much for affordable care. My primary care docs at EVMS, especially Drs. Grant and Newman, have been so helpful in finding new specialists.

So, I got a new neurologist. She worked with me to find the best disease modifying drug for me. That ended up being Tysabri. But getting to the point where I could take As a monthly infusion, with periodic blood tests, Tysabri required me getting better with venous puncture.

So, I’ve done that. I’ve also worked faithfully, despite an incredibly bad work situation.

I could dig and find something else, perhaps, but I really don’t think anything would come close. Nothing’s had a bigger effect on my life. I feel better than I have in I don’t know how long.

I wish I’d done a few things differently which would allow me to enjoy this newfound “health” more, but…

Last updated November 29, 2015