cirrhosis lack of knowledge in Hi This is Kat!

  • May 30, 2024, 5:39 p.m.
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I wish I had a meld score or a child-pugh score on Jo so I could better understand just how far along she is. BUT she has never ever went to a specialize doctor for cirrhosis! Guessing they tried to get her to go years ago but she refused?
Her last doctor refused to treat her for non compliance and missed appts. I got her in with my doctor about 5 or 6 years ago.
She was throwing up blood about 4 years ago so they did an upper GI and I guess that was the first time I had heard she had cirrhosis and guessing because this was a symptom of decompensated cirrhosis she was in that stage???
Each time she was in the ER and then moved into a ICU room I also learned more and actually got some numbers
As far as I know Jo have known she had cirrhosis for about 6 or 7 years but NEVER got educated or learned how fast it can kill you or maybe she opted to just not know that part via denial???
Oddly no doctor at the hospital ever sat down and gave her the facts… but I am sure they could have when I was not around and probably did.
Our doctor did tell me last oct or nov that by Jo’s numbers he gives her less than 6 months! BUT Obviously he was wrong because Jo has beaten those odds… thinking it has been 7 months but..... Jo is now worse than she has been. She avoids me so I cannot judge how bad she is. She refuses to go to the doctor so I am left to google her symptoms.

Cirrhosis is such a sad horrible disease! She has ascites where she looks pregnant now, she lost almost all her muscle and is down to about 90 to 100 pounds before the ascites, her eyes are yellow, she has light colored poop, she is shaky, and tired.... I think it looks bad! I have read that jaundice itself is not dangerous it just lets you know you have liver issues so that is good.

yes, I know, I worry way to much but she is my very best friend


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