Home A Week Now in Still Listening to Spirit
- June 29, 2014, 10:31 a.m.
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This week has been short, lazy and I spent a lot of time in deep sleep during the day and again at night. I think I am catching up, at least I hope so. I have barely done any work for pay and as little as possible keeping the house straightened. I look around and it just doesn't matter.
I have been feeding us both, although neither of us are enthused about choosing something to eat. There's just not much that appeals. I am still fixing a lot of strawberry milk shakes for Bill.
Lynn wants Bill to go to Anchorage to a lung specialist. I have questions and suggestions before we make that trip.
In working pre-books, I am in touch with Gwen who operated Disc Sgy until lung surgery this last winter. She is still referring reservations she gets from her website to us. In passing, she mentioned that the 'lung cancer' she was diagnosed with by 2 doctors was not that. She said she wanted one more opinion and went to the Mayo Clinic where they found a mold was causing her problems, took it out. and no further treatment was recommended.
Now that was a revelation. So I went online and found several fungi and mold that are possibilities given symptoms and some of the things that cause them. I also found a couple of parasites related to dog feces and the handling thereof that can infest lungs and other organs.
So I want to discuss with Lynn whether or not these have been considered. Also, I want her to take another x-ray to see if anything has changed. We also did not do a biopsy on whatever it is in there while in Juneau after the tB was 'diagnosed' and I want to know if they can find out more by doing this.
I also want to know what a lung specialist would do to diagnose that can't be done here or in Juneau. Anchorage is big...well big for Alaska with over 20,000 people, impersonal, busy, and expensive.
Anyway, Bill is a wee bit better. He still has no energy but is making the effort to do things. Yesterday he did the dishes, although it took him sitting down 3 times for what was really a small amount of work.
So, nothing new, resting and recovering. Cloudy here with some sun I got out in to brighten my mood a bit. I feel flat, uninterested in doing anything but reading a book or roaming the web.
Maybe I am writing too soon after I woke this morning. Who knows.
Blessed be!
Hillbilly Princess ⋅ June 29, 2014
I hope they find whats wrong and its a very simple fix for Bill.
seedys Hillbilly Princess ⋅ June 29, 2014
Thank you, me too. I keep praying and waiting for Spirit to speak also.
Kimber ⋅ June 29, 2014
I'm interested in the fungus angle too. I can't remember now if I left you a note about Valley Fever, the fungus that originates in the dirt here in AZ. When we had to go to the ER, I asked the ambulance driver if he had heard of any Valley Fever cases up here, and he said he personally knew of at least two. My husband is doing a little better, but depite the antihistamines he was prescribed he still has to use an inhaler. I'm feeling more and more skeptical that he has allergies or any form of COPD.
seedys Kimber ⋅ June 29, 2014
Keep pushing, research on the web, consult the state and local health department and/or their website too. There is all kinds of information there.
Everything Good Rebecca ⋅ June 29, 2014
The mold idea makes good sense, especially considering the way we tend to keep our houses airtight in the winter. Your friend learned it wasn't cancer at the Mayo clinic, and I'm thinking that may be where Bill needs to go too. Also, a mold could be a problem in your house, and could be the explanation for whatever your illness was and the way your body is not bouncing back as usual now. Please check! I'm still praying for you both and hoping for the best.
seedys Everything Good Rebecca ⋅ June 29, 2014
AND we live in the rain forest, are always damp and our houses smell like basement even when above ground. Thanks for continued prayers.
noko ⋅ June 29, 2014
Oh I so get the flat not interested no energy thing. Both of you so stressed out by what is going on and the uncertainty of it all. I do hope you are able to get a clear diagnosis and a plan. But in the meantime my thoughts are with you all. Including the dogs.
ThoughtsAfter ⋅ June 30, 2014
So much falls on our shoulders as patients these days, doesn't it? Research was high on my list; Kermit did none for himself, not in cancer, heart or lung emergencies, but of course I love research in any any subject and he knew that. Keeping you and Bill in my thoughts, Seedys. Hope here for the best for you two there.. Glad you're resting, too.
Everything Good Rebecca ⋅ July 01, 2014
Feeling better yet? I'm hoping so...