A Continuing Tradition of Medical Maladies in General Mental Anesthesia

It’s been a minute, hasn’t it?

I wonder if any of my peeps are still on here, or are you all new peeps? New peeps are always welcome.

Though you may have just wondered through the wrong door.

Ever get that feeling that dark clouds just seem to follow you everywhere you go, even on a sunny day? :/

So what’s up everyone?

If you’re my peeps; I’ll provide a health update… it’s not good news.

Wow, it’s been a while. (Some media may not be suitable for all audiences)

I don’t remember what I last wrote, I didn’t bother to check in terms of updates.

I did finally get on disability. I have a whopping $500 a month to live on. Could’ve sworn I earned significantly more than that as a filmmaker and photographer… With my health costing me between $350 (conservatively) and $400 a month, well… you can do the math. To put it mildly… times are pathetically tough.

It does mean that I had to stop accepting donations to the go fund me page, because if I were to get a donation now, the government would take my disability away. I still have those funds to see my holistic dr. however. That still has yet to happen. It’s always something. I make plans and my mom is hospitalized… then I make plans again and covid spikes or I’m hospitalized… It’s like the universe is working against me.

I’m going to try again to make plans in a few months, maybe sooner if possible. I’m so sick 15 - 20x a day it’s hard to travel to the mailbox let alone 800 miles in any direction.

I’ve been battling back injuries as usual, for the better part of 2022, I’ve had 7 broken vertebrae along with 9 bulging discs and a herniated disc. Problem is that I’ve had a VERY severe cough (Pertussis, Group F Beta Strep & Aspergillus) for 6 months! Violent coughing spasms that just keep breaking and re-breaking my bones. #osteoporosis. Also, consider all these health issues and then me trying to drive 800 - 1000 miles to see my Dr. It’s a tall order, but my only option. I honestly don’t know how much longer I can survive. I don’t know how I’ve survived this long to be honest.

So… to catch you up.

I had a bronchoscopy (that sucked!)

https://youtube.com/shorts/p57j9cB6iVU?feature=share

My pulmonologist after I came to said that was the worst brochoscopy that she’s ever seen. She said that I was in worse shape than all of her hospitalized patients.

I’ve had a dozen iron infusions since last we spoke…

I’ve had multiple (FAILED) back procedures…

I broke out in severe dermatitis because of all the uncontrolled inflammation in my body… that lasted several agonizing months!

I had two punch biopsies taken as a result (thankfully they came back negative, but they required a few stitches).

I’m still on a steady diet of meds and supplements multiple times a day.

Due to the severity of nerve damage to areas of my back, I opted to have the nerve endings burned off. Yeah… it’s a painful procedure, but my insurance wouldn’t cover it.

Speaking of surgeries and procedures that my insurance won’t cover… I’m due two back MRI’s for pre-op surgery on my lower back and they won’t cover that, nor will they cover ANY sort of procedure on my mid back where I have frequent chronic pain.

I can’t stand for ten minutes without having to lay down. What sort of life can I ever have?

Overall… this is the perfect picture to describe how my life is going. I genuinely love this photo because it “perfectly” represents how I feel every second of my life (and it makes me want to cry because I don’t want to feel like this). I try so very hard to make good decisions, but it seems that every attempt I make to fix or heal something is thwarted by money (or lack thereof) which includes my health insurance constantly giving me the middle finger any time a surgery or extensive procedure is recommended.

It really has been a continuance from where I left off on here.

I’m sick. I’m in pain. I’m severely depressed. I’m miserable and alone.

Ain’t it great to be back on PB sharing all this wonderful news?

I did get to do a bit of storm chasing, and had a very close call, that was interesting. Didn’t reach the ground, but it was directly over my head. A little too close for comfort, but maybe being struck would’ve burned off those nerve endings for me. (Silver linings and all).

and of course Boba Fetch is doing well.

Drop a note and say “hi” and as always: Good luck with the number 3.

Last updated November 21, 2023