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My EDS Challenge Day 20- Behind the Scenes
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 19- EDS/HSD in one photo
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 18- Word to Parents
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 17- Childhood
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 16- Coping
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 15- Home/Isolation
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 14- Explaining EDS/HSD
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 13- Medical Appts
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 12- Doctors/Nurses
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 11- Nature
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 10- Mental Health
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 9- Inclusion
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 8- Movement & Activity
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 7- Comfort
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS challenge Day 6- Management Strategies
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 5- Schools/Teachers
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 4- A Day with EDS/HSD
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge: Day 3 Symptoms
I am taking part in #MyEDSChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awaren...
My EDS Challenge: Day 2 Diagnosis
I am taking part in #MyEDSChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awaren...
My EDS Challenge: Day 1 This is me
I am taking part in #MyEDSChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awaren...
Video Update- 1yr2mo post
What are EHLERS-DANLOS SYNDROMES? The Ehlers-Danlos syndromes are a group of connective tissue disorders that are genetic and are varied both in how they affect the body. They are generally char...
DNA testing
I am going to start focusing less on my pudendal nerve surgery updates and transition over to a life with EDS public blog. I will try and tie everything together that way in terms of my PNE as we...
Dazzle
“Having EDS is to share a body and a spirit that do not harmonize and to live in the gap in between, trying to make this liminal space a forever home.” Someone on one of the failbook groups I am ...
Hypermobility does not always equal FLEXIBILITY!
https://murraymeetze.com/uniquelystriped/its-not-about-flexibility?fbclid=IwAR3v3Ax0ps65PHBlpK43Wp3CyNxahkJDTRKH_ENNkhNy2OMAwcHLg-S_AFE This was a very important EDS related read.
